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Useful Contacts

Epilepsy Action

They are the main UK epilepsy organisation and their role is improve the lives of everyone affected by the condition.  They are a member-led association, who represent people with epilepsy, their friends, families and healthcare professionals.

Provides information about coping with epilepsy and seizures.  They provide free help and advice through email and telephone helplines.

Email: helpline@epilepsy.org.uk

Web: www.epilepsy.org.uk

Helpline: 0808 800 5050 (free UK calls)

Epilepsy Action Tyneside

Epilepsy Action Tyneside (EAT) is a local branch of the national charity Epilepsy Action which aims to provide an information and support service to those affected by epilepsy in Tyneside and surrounding regions.  Contact them for more information about epilepsy and the service they provide.

They hold a monthly support group in the centre of Newcastle, which is suitable for anyone aged 18 years and over affected by epilepsy, including parents of young children with epilepsy.  The meetings are unsuitable for children themselves.

Tel: 07756 721 831

(please leave a voicemail message, including your name and contact number, and they will get call you back as soon as possible)

Email: epilepsyactiontyneside@gmail.com

Web: www.epilepsyactiontyneside.webs.com

Epilepsy Society

Works towards a full life for everyone affected by epilepsy.

Web: www.epilepsysociety.org.uk

Email: fromthehelpline@epilepsysociety.org.uk

National Helpline: 01494 601400

(Mon, Tue, Thu, Fri, 9.00am – 4.00pm &

Wed 9.00am – 8.00pm)

Young Epilepsy

A national charity working with children/young people aged 25 and under with epilepsy and associated conditions.

They provide a range of support and advice for parents, children and young people.

Helpline: 01342 831342 (Mon – Fri 9am – 1pm)

Email: helpline@youngepilepsy.org.uk

Web: www.youngepilepsy.org.uk

Newcastle Special Educational Needs and Disabilities Information, Advice and Support Service (SENDIASS)

This service provides information specialising in education matters and includes information and signposting on social care and health issues.

Contact: Judith Lane

Tel: 0191 284 0480


(New name for Contact a Family)

Helping families who care for disabled children.

Tel: 0808 808 3555

Email: northeast.office@contact.org.uk

Web: www.contact.org.uk

Look for advice in your area – select North East

Local Offer

The Local Offer describes the services available for children/young people with special educational needs or disabilities (SEND) aged 0 – 25 and their families.

Email: localoffer@newcastle.gov.uk

Web: www.newcastlesupportdirectory.org.uk

Select SEND Local Offer